Summary
The DRWF Wellness Day South brings together a wealth of information under one roof for people living with diabetes, their family members, carers, friends and those with an interest in diabetes. The event is run in close collaboration with local healthcare services, complementing and reinforcing key health messages to support optimised glycaemic control and psychosocial well-being. The programme has grown from workshops delivery to include a ‘hub’ area and satellite sessions throughout the day.
Innovation
Nothing currently exists for PWD that is similar with our work, in the way that it is structured, delivered and evaluated. We pride ourselves on the rigorous process of selection of speakers, topics, health zone participants and peer support that we provide. This combination of clinical relevance and social support enables delegates to feel relaxed and comfortable, to gain a greater understanding of diabetes, especially their own, and to learn new ways to optimise self-management and develop peer support networks. We work closely with local health service providers, commissioners, primary and secondary healthcare professionals, psychologists and local groups to ensure a balanced, holistic and enriching experience for every delegate. The DWDS is unique, bringing together a wealth of information for PWD, family, friends and carers using a holistic approach and a variety of methods. Participants are provided with information and applied skills needed to support optimal diabetes self-management and advice on healthier living. Impact evaluation is conducted with baseline, one month and three months’ follow-up using validated and reliable measures assessing participants’ attitudes and behaviours, social support, peer support and networking, diabetes technology and willingness to attend future diabetes care events.
Results
Results show a large number of participants having a greater understanding of their diabetes (78.3% at one month and 80% at three months) as a consequence of attending. Furthermore, 69.6% (one month) and 73.7% (three months) report a better understanding of what support, information and resources are available and where to access them. Post-event, 60.9% participants felt less alone/isolated. Furthermore, 68.2% (one month) and 75% (three months) feel more independent and better able to make day-to-day decisions regarding diabetes management, feeling more positive about living with diabetes. Baseline Diabetes Self-Efficacy Scale data show low confidence in carrying out diabetes-related activities for many with 42.8% expressing a lack of confidence on exercising and 21.8% low confidence around food-related issues. As these lifestyle behaviours are linked with obesity, it is crucial individuals are adequately supported to make appropriate behavioural changes in this regard. 74% (one month) reported having started exercise to improve diabetes management, 70% reported having a better idea about available resources and their access to them, increasing to 74% (three months). It is difficult to calculate clear cost savings to the NHS however our evaluation shows a positive impact on self-management, reduced diabetes-related distress and improved psychosocial well-being, all impacting on diabetes outcomes. Increased self-efficacy in diabetes self-management activities and improved knowledge suggest a potential NHS cost saving potentially reducing burden on resources for treating complications. The Wanless report (2002) asserts that every £1 spent on education saves £1.50 in the long term. Costs per DWDS delegate are £44.50. In comparison, DAFNE courses (5 days) are £550 per patient. DESMOND courses are £2,850 for the licence, plus £350 per day per educator (2 required), £850 for quality development and study day, starter pack at £2,310 (totalling £6,710), excluding accommodation/refreshments. DWDS represents excellent value for money.
Dissemination and Sustainability
While we are grateful for the voluntary input and enthusiasm of all our colleagues, we function independently of ‘goodwill’, so our events are sustainable year-on-year. DRWF is a national charity providing information and support to those living with all forms of diabetes. The DWDS programme demonstrates potential to become a franchise-like offering reproducible around the country. The event and impact evaluation are reproducible in their entirety. We are happy to collaborate with others interested in developing and running the programme.
Method
Our organising committee plans the programme structure, its content and logistics at a local venue. The programme of talks focuses on the provision of evidence-based practical advice, the importance of education and diabetes-related information including dietary advice, managing cardiovascular risk, managing blood glucose levels and identifying and managing long-term complications. We provide a variety of workshops and practical sessions, all led by expert healthcare professionals. Exhibition stands are manned by experts to ensure attendees receive a wide range of medical, diagnostic and holistic support. The day provides tools, knowledge and practical skills needed for optimal self-management. Furthermore, peer support from friendly, like-minded people in a relaxed and informal atmosphere enhances learning in a non-threatening, non-judgemental manner. Independent evaluation of the event is conducted using validated measures: WHO 5 well being index, diabetes self-efficacy scale and diabetes distress scale [5-7] alongside questions specific to the event. Accessibility is key, so we stay close to good public transport links and as central as possible within the region.
